JOIN THE FIGHT 🦋

NO ONE FIGHTS ALONE
NO CURE
LEARN ABOUT OUR STORY
My name is Alei Miller, I am a single parent to my wonderful daughter Ariella. I make products for EB Awareness. My daughter who is now 3 years old was born in 2021 with a very rare skin condition, Epidermolysis Bullosa. I had no idea this disease ever existed. So the day she was born she was flown to a different city where they then determined what she had. The worst disease you've never heard of. She spent 6 days total in the nicu. We were sent home on the 6th day of Ariella being on earth. With no manual. No instructions. I had to teach myself as I go i still do. Ask for advice from fellow eb parents. Ask the Debra nurse. That being said I'm here to make shirts and products with vinyl!!
Promoting EB Awareness
Find out how you can help raise awareness about Epidermolysis Bullosa in your community.

get in touch

contact me
I’m a paragraph. Drag me to add paragraph to your block, write your own text and edit me.

Popular Articles

Understanding Epidermolysis Bullosa
Learn about the different types of Epidermolysis Bullosa and the areas it affects usually. EB-Simplex EB-Junctional EBJunctional-H Recessive-Dystrophic EB Dominant Dystrophic
Caring for Individuals with EB
Discover tips and techniques for managing the daily challenges faced by individuals with EB. Visit www.Debra.org
Research and Treatment Breakthroughs
Support Groups and Communities
Connect with others who understand the challenges of living with EB and find support. EB lounge on Facebook, Debra.org
Educational Resources for Medical Professionals
Access resources and information specifically designed for medical professionals working with EB patients. Visit debra.org
Creating Awareness through Fundraising Events
Learn about upcoming events and initiatives aimed at raising awareness and funds for EB research.
Living with EB: Personal Stories
Read inspiring stories shared by individuals living with EB and their families.
Preventing Complications and Managing Symptoms
Discover strategies and techniques for preventing complications and effectively managing symptoms of EB.